Thursday, July 31, 2014

Photo Update for Rocco

I know it's been some time since you've seen a photo update on the boy.  These were all taken in July! If you follow me on Instagram then you have seen probably all of these already but I know many of you are not on Instagram. So here goes...
He's becoming quite the little model. ;)

Carpe Diem

 I am boy here me roar!






Enjoying himself in Baltimore after the Marfan Conference ended. 
That was an amazing experience to be apart of to learn so much more of how to cope with him having marfan syndrome.  It was so awesome getting to speak with heart surgeon Duke Cameron at Johns Hopkins about my questions and concerns. He was so kind and answered every question I could come up with in a short amount of time. Truly an amazing surgeon, my only hope is that when the day arrives for Rocco to have heart surgery, he is the gentleman that performs it. I'm hoping that day is still aways down the road. 











Then there was the day he wanted to be a king...




King of the Felton corn ;) 









Davey Crockett





















 Goob

 Loves his airplane. vroom vroom




xoxo - Christy



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